Evans participates in WhiteHouse/Medicine X Workshop on Partnership in Research 

University of Houston Law Center Professor Barbara Evans, left, teams with Tania Simoncelli of the Broad Institute of MIT and Harvard, student Matthew Erlendson of Yale Medical School and Stanford Medicine X, Kathryn Giusti of the Multiple Myeloma Research Foundation, and cancer survivor Corrie Painter of the Broad Institute, to map out a new business model for engaging patients in research.

Evans arrives at the June 2 White House workshop on Engaging Participants as Partners in Research.

June 6, 2016 — University of Houston Law Center Professor Barbara Evans visited the White House on June 2 to take part in a design workshop hosted by the White House Office for Science & Technology Policy and Stanford Medicine X.

The workshop gathered about 80 patients, students, entrepreneurs, healthcare professionals, educators, policy makers, government officials, publishers and researchers from around the world with the goal of mapping out new ways to foster innovative relationships between biomedical researchers and the people who participate in research studies. Participant engagement is a core principle of the President's Precision Medicine Initiative.  

Stanford's Medicine X initiative is a part of the Stanford Anesthesia, Informatics, and Media (AIM) Lab. Under the direction of Larry Chu, M.D., it acts as a catalyst for new ideas about the future of medicine and health care, based on the potential of information technology and social media to reshape the practice of medicine and empower patients to become active participants in their own health care. 

Evans, who has visited the White House three times in recent months in connection with the Precision Medicine Initiative, characterized the June 2 workshop as a "roll-up-our-sleeves-and get-to-work event." The workshop followed Medicine X's Everyone IncludedTM  convening charter, which aims to ensure that all stakeholders are represented and everybody's insights are equally valued.

Evans noted that the inclusive approach "works really well. Particularly in healthcare, it's amazingly productive to set everybody—patients, policymakers, scholars, doctors, students, CEOs—on an equal footing. The problems are so complex that no honest person can claim to be an 'expert' and the sooner we listen really carefully to each other, the sooner we may get to some meaningful solutions."  

Click here to view her argument 

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